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Creating Participatory Research: Further reading, links to websites and practical resources

Chapter 1
Chapter 2
Chapter 3
Chapter 4
Chapter 5
Chapter 6
Chapter 7
Chapter 8
Chapter 9
Chapter 10

Chapter 1

Additional Resources (journal articles)

Flicker, S., Savan, B., McGrath, M., Kolenda, B. and Mildenberg, M. (2007) ‘If you could change one thing…what community-based researchers wish they could have done differently’ Community Development Journal 43, 2, pp. 239-253.

Nind, M. (2017) ‘The practical wisdom of inclusive research’ Qualitative Research 17, 3, pp. 278-288.

Schlove R (1997) ‘Research by the people, for the people’ Futures 29, 6, 541 – 549.

Web-sites/Links to practical resources



Chapter 2

Additional Resources (journal articles)

Flinders, M., Wood, M. and Cunningham, M. (2016) ‘The politics of co-production: risks, limits and pollution’ Evidence and Policy 12, 2, pp. 261-79.

Kagan, C. (2013) Co‐production of research: for good or ill? Paper presented to Research Conference, Edge Hill University, July 8th, 2013.

Oliver, K., Kothari, A. & Mays, N. (2019) ‘The dark side of coproduction: do the costs outweigh the benefits for health research?’ Health Research Policy and Systems 17, 33, https://doi.org/10.1186/s12961-019-0432-3

Web-sites/Links to practical resources



Chapter 3

Additional Resources (journal articles)

Baum, F., MacDougall, C. & Smith, D. (2006) ‘Participatory action research’ J Epidemiol Community Health 60, 10, pp. 854–857.doi: 1136/jech.2004.028662.

Hopkins, P., Sinclair, C., & Shawlands Academy Student Research Committee. (2017). Research, relevance and respect: Co-creating a guide about involving young people in social research. Research for All, 1(1), 121-127.

Minkler, M., Garcia, A., Rubin, V. and Wallerstein, N. (2012) Community Based Participatory Research for Health: Processes and Outcomes 2nd Edition Jossey-Bass, San Francisco.

Sanders D, Labonte R, Baum F, et al. (2004) Making research matter: a civil society perspective on health research. Bull World Health Organ;82:757–63.

Southby K (2017) Reflecting on (the challenge of) conducting participatory research as a research-degree student. Research for All 1(1), 128-42

Web-sites/Links to practical resources

  • The McPin Foundation exists to transform mental health research by putting the lived experience of people affected by mental health problems at the heart of research methods and the research agenda, including peer research – this website resource explains how people can get involved.
  • The Institute for Development Studies have produced a resource on participatory methods.
  • The European Union’s Responsible Research and Innovation website is worth exploring, as it advocates participation of all actors in research. This webpage on community based participatory research may be a good place to start.



Chapter 4

Additional Resources (journal articles)

Banks, S. et al. (2013) ‘Everyday ethics in community-based participatory research’ Contemporary Social Science 8, 3, PP. 263-277.

Centre for Social Justice and Community Action (2012) Community-based participatory research: a guide to ethical principles and practice Bristol, NCCPE available here.

Fickler, S., Roche, B and Guta, A. (2010) Peer Research in Action III: Ethical Issues Toronto, Wellesley Institute.

Web-sites/Links to practical resources



Chapter 5

Additional Resources (journal articles)

Van der Vaart, G., van Hoven, B., & Huigen, P. P. (2018, May). Creative and arts-based research methods in academic research. Lessons from a participatory research project in the Netherlands. In Forum Qualitative Sozialforschung/Forum: Qualitative Social Research (Vol. 19, No. 2).

Tremblay, M., Kingsley, B., Gokiert, R., & Benthem, G. (2018). Engaging Vulnerable Youth in Community-Based Participatory Research: Opportunities and Challenges. Journal of Community Engagement & Higher Education, 10(3).

Eaton, A. D., Ibáñez-Carrasco, F., Craig, S. L., Chan Carusone, S., Montess, M., Wells, G. A., & Ginocchio, G. F. (2018). A blended learning curriculum for training peer researchers to conduct community-based participatory research. Action Learning: Research and Practice, 15(2), 139-150.

Web-sites/Links to practical resources

  • This website is dedicated to one method of running a ‘participatory workshop in a bag’ but if you explore the website you will pick up lots of more general ideas for best practice in how to run a participatory workshop. This particular tool was developed directly by researchers and features in the University’s case study submission to the 2014 Research Excellence Framework.
  • A useful summary of different participatory data collection methods, with some hints and tips that you can share with your lay participants and researchers.



Chapter 6

Additional Resources (journal articles)

Best, P., Badham, J., Corepal, R., O’Neill, R.F., Tully, M.A., Kee, F.& Hunter, R.F. (2017) ‘Network methods to support user involvement in qualitative data analyses: an introduction to Participatory Theme Elicitation’ Trials 18:559 DOI 10.1186/s13063-017-2289-5.

Lincoln, A, K., Borg, R., & Delman, J. (2015) ‘Developing a Community-Based Participatory Research Model to Engage Transition Age Youth Using Mental Health Service in Research’ Fam Community Health 38, 1, pp. 87–97.

Stevenson, M. (2014) ‘Participatory data analysis alongside co-researchers who have Down Syndrome’ Journal of Applied Research in Intellectual Disabilities 27, pp. 23-33.

Web-sites/Links to practical resources



Chapter 7

Additional Resources (journal articles)

Chen, P.G., Diaz, N., Lucas, G. & Rosenthal, M.S. (2010) ‘Dissemination of results in community-based participatory research’ American Journal of Preventative Medicine 39, 4, pp. 372-378.

McDavitt, B., Bogasrt, L.M., Mutchler, M.G., Wagner, G.L., Green, H.D., Lawrence, S.J., Mutepfa, K.D. & Nogg, K.A. (2016) ‘Dissemination as Dialogue: Building Trust and Sharing Research Findings Through Community Engagement’ Preventing Chronic Disease, 13: 150473.

Knerr, S., Hohl, S.D., Molina, Y., Neuhoser, M.L., Li, C.I., Coronado, G.D., Fullerton, S.M. & Thompson, B. (2016) ‘ Engaging Study Participants in Research Dissemination at a Centre for Population Health and Health Disparities’ Progress in Community Health Partnerships: Research, Education and Action 10, 4, pp. 569-576.

Web-sites/Links to practical resources



Chapter 8

Additional Resources (journal articles)

Koster, R., Baccar, K. and Lemelin, R. (2012). ‘Moving from research ON, to research WITH and FOR Indigenous communities: A critical reflection on community-based participatory research.’ The Canadian Geographer / Le Géographe canadien, 56,2, pp.195-210.

Lee-Treweek, G. and Linkogle, S. (2000). Danger in the field. London: Routledge.

Sushama, P., Ghergu, C., Meershoek, A., de Witte, L., van Schayck, O. and Krumeich, A. (2018). Dark clouds in co-creation, and their silver linings. Global Health Action, 11(1), p.1421342.

Web-sites/Links to practical resources



Chapter 9

Additional Resources (journal articles)

Askew, P. (2001). The University as a Source for Community and Academic Partnerships. New Directions for Student Services, 2001(96), pp.61-82.

Carney, Jan K., Hendrika J., Maltby, Kathleen A., Mackin, and Martha E. Maksym. (2011) ‘Community–Academic Partnerships: How Can Communities Benefit?’, American Journal of Preventive Medicine, 41(4), pp. S206–S213. doi: 10.1016/j.amepre.2011.05.020

Hart, A. and Wolff, D. (2006). Developing local ‘communities of practice’ through local community – university partnerships. Planning Practice and Research, 21(1), pp.121-138.

Web-sites/Links to practical resources



Chapter 10

Additional Resources (journal articles)

Cook, T., Boote, J.,  Buckley, N., Vougioukalou, S. & Wright, M. (2017). ‘Accessing participatory research impact and legacy: developing the evidence base for participatory approaches in health research’ Educational Action Research 25, 4, pp. 473-488.

Fenge, L., Jones, K. & Gibson, C. (2018) ‘Meaningful dissemination produces the “long tail” that engenders community impact’ Qualitative Research Journal 18, 1, pp. 45-54.

Oetzel, J. G., N. Wallerstein, B. Duran, S. Sanchez-Youngman, T. Nguyen, K. Woo, J. Wang, et al. 2018. ‘Impact of Participatory Health Research: A Test of the Community-Based Participatory Research Conceptual Model.’ BioMed Research International 2018 (1): 7281405. doi:10.1155/2018/7281405. http:// dx.doi.org/10.1155/2018/7281405.

Web-sites/Links to practical resources